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This paper describes the development of a new scale for the assessment of epilepsy in people with learning disabilities. The scale was developed and validated in consultation with principal carers, and reflects their concerns about seizures, their impact and their treatment. Further testing of the scale revealed high internal consistency, testretest reliability and a robust factor structure. The scale can be completed in 5-10 min and may be useful as an outcome measure both in clinical practice and in research trials.


Journal article


J Intellect Disabil Res

Publication Date



42 ( Pt 1)


90 - 96


Adaptation, Psychological, Adolescent, Adult, Anticonvulsants, Anxiety, Caregivers, Child, Cost of Illness, Depression, Epilepsy, Female, Humans, Intellectual Disability, Male, Middle Aged, Outcome Assessment (Health Care), Reproducibility of Results, Seizures, Sick Role